The subjective value of a life with Down syndrome: Evidence from amniocentesis decision

Journal article: Using a simple theoretical decision model and an original database, we were able to elicit the distribution of the utility value of having a child with Down syndrome for a large sample of French pregnant women (n = 28,341) between 2003 and 2007. We found that, on a scale where the value of a fetal death is 0 and the value of a healthy child is 1, the mean value for a child with Down syndrome is about −0.6. Assuming that the policymaker used the same decision model as the women, we infer from the French amniocentesis reimbursement regulation an implicit social value for a child with Down syndrome of −2.5. We conclude from our study that the policymaker is more likely to prevent the birth of children with Down syndrome than French women themselves.

Author(s)

Thibault Gajdos, Clémentine Garrouste, Pierre-Yves Geoffard

Journal
  • Journal of Economic Behavior and Organization
Date of publication
  • 2016
Keywords
  • Amniocentesis choices
  • Expected utility framework
Pages
  • 59-69
Version
  • 1
Volume
  • 127