Graph | Adopting a universal care pathway in rare disease | Meng Jiang
Discover the graph of Meng Jiang. This graph is extracted from her contribution in the working paper dedicated to the healthcare pathways of many patients with a rare disease.
Based on the work of :
Working paper : Dupont Jean-Claude, Jiang Meng, Rochaix Lise, Tubeuf Sandy, “Adopting a universal care pathway in rare disease”.
Meng Jiang is a Ph.D. student from Paris School of Economics and the university Paris 1 Panthéon-Sorbonne. She is a health economist who has background in Economics, Data Sciences, and Finance. Her past work has focused on improving equity and efficiency in rare diseases, using the methods from behavioural and experimental economics and economic theory. Her current studies will shed light on the construction of a generic care pathway, eliciting preferences on health information using experiments, and measuring R&D spillovers cross rare and non-rare drugs.
Her thesis is funded by the Institute of Genetic Diseases “Imagine” and is attached to the PSE doctoral programme “Enterprise and Society”.
Read more
- Andersen Barbara L., Cacioppo John T. and Roberts Dawn C., 1995, Delay in seeking a cancer diagnosis: delay stages and psychophysiological comparison processes, The British journal of social psychology, 34 ( Pt 1), 33–52.
- Eurordis, 2017. Juggling care and daily life: The balancing act of the rare disease community.
- Baynam, Gareth et al., 2017, Improved Diagnosis and Care for Rare Diseases through Implementation of Precision Public Health Framework, In: Posada de la Paz, M., Taruscio, D., Groft, S. (eds) Rare Diseases Epidemiology: Update and Overview. Advances in Experimental Medicine and Biology, vol 1031. Springer, Cham.
- Heuyer Thomas, Pavan Sonia and Vicard Christine, 2017, The health and life path of rare disease patients: results of the 2015 French barometer, Patient related outcome measures, 8, 97–110.
- The Lancet, 2019, Spotlight on rare diseases, The Lancet Diabetes & Endocrinology, February 2019.
* This infographic is part of the “Economics for everybody” formula.